Hubs Update

We found out yesterday that hubby probably has sarcoidosis. The docs are sending the samples away to yet another expert just to be sure. It's a weird rare autoimmune disease. There's no cure and i believe they mess around with a variety of drugs to try and treat it... mostly steroids. I think it's more life altering than fatal. So now we wait to find out how they want to go about trying to save the eyesight in hubs one remaining good eye.

SARCOIDOSIS

Sarcoidosis is a rare multi-system, auto immune disease that is known for its long remissions and wide variety of symptoms. Sarcoidosis symptoms vary from person to person - no two are exactly alike. It is a granulomatous disease in which inflammation may occur in lymph nodes, lungs, liver, eyes, skin, joints, kidneys, liver and spleen, and other tissues.

Some patients (60%) have Sarcoid for a period of 2-3 years and never have it again, but others have it chronically, some with periods of remission.

taken from The World Sarcoidosis Society

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Me Me Me

I've been feeling pretty down lately... worse the last day or two. That's probably why i haven't been blogging much and also because i don't have as much time with hubby at home and summer hols etc. Strange really because the weather is perfect and i've been swimming almost everyday... usually i'd feel great. :) Anyway, i probably won't be blogging much in the next couple weeks but hopefully after that things will get back to something close to normal.

posted by susi 9:24 AM

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